Prayers sent!
Thanks so much guys. My wife and i have read every note and message and the support helps so much. SMA is a parents worst nightmare. Cameron was fine for the first couple of weeks. Now he cannot move his arms and legs or hold his head up. slowly they lose the ability to eat or breathe within 6 months.
The good news is that I got baby Cam accepted into a very promising experimental drug trial and he should be getting his first spinal injection Wednesday. Right now he is happy and smiling more every day. As long as he is not suffering we will try everything we can and never stop fighting for little Cam.
Rob Harding
236 Sailfish 250 4s Yam
Charleston diving
http://www.charlestondiving.com
(Fish not Biting? Try a fast presentation of spring steel)</font id=“green”>
Prayers for u and ur family. God Bless
Thanks,
Paul
GW 257 Advance
My Family and I will pray for you.
Our thoughts and prayers are with you both! God Bless.
388 Edgewater
Edisto Island, SC
T’anks Darlin’, Don’t Mind If I Do!
Cam, Alison and Rob,
He loves you.
He will not abandon you.
He will strengthen you.
Our prayers are with you and Cam’s caregivers.
We love you too.
Keep surrounding him with love… prayers sent your way.
Praying for little Cameron and your whole family.
Captain Jamie Holcombe
Full Circle Fishing Charters
843-209-1895
www.fullcirclefishingcharters.com
Been praying for y’all!
“Those who have the ability to make a difference have the responsibility to do so.” Thomas Jefferson
Not fair at all…praying for you and your family Rob. Young Cameron is very lucky to be surrounded with so much love. You guys have been in my thoughts since my dad told me about this the other day.
'a stranger is just a friend i havent met yet’jt
You and your family are in our daily thoughts and prayers.
Our thoughts and prayers are with you!
Scott Fulton
AgentOwned Realty
Scott.Fulton@AgentOwnedRealty.com
Praying for Cameron and your family.
Hang in there Rob, you are a hell of a guy and very well respected in this community. If you need anything don’t be afraid to ask. Lots of people you know and many you don’t are praying for you and your family and here for support. Let us know if we can do anything.
Set the trap boys, we going to pass through them again!!
Just saw this, don’t get on the fishing sites too often. Prayers are sent your way.
This is just absolutely terrible.
My sincere, deepest sympathies to you and your family. I just can’t imagine…
Prayers sent your way for peace for everyone involved, and for that experimental drug to work!
A long long slow walk in the spartina gives you time to think big thoughts and put your mind back into order.
- Flatscaster
Prayers out to your family Rob and Allison, and Cameron
Sailfish CC
130 Yamaha
Wild Bill
Praying that the drugs will be the answer for him to live a long time . Also for you and you wife, and family .
God bless you
I DONT HAVE A BOAT
BUT LOVE TO FISH> HINT
Thank you so much for the well wishes and support. it really does help.
Cameron got the experimental drug from the ISIS SMNRx clinical trial on Wednesday at Nemours children’s hospital in Orlando. They can’t tell us what to expect so only time will tell. Right now he is breathing and eating fine but can not move his arms, legs, neck except for tiny movements. His mental development is not effected so his brain is fine. He does give some pretty big smiles that melt hearts.
This has been so heartbreaking holding that sweet smiling baby and not knowing what will happen to him. Ali and I have reached the point where we are completely cried out.
https://www.facebook.com/groups/hope4cameron/ </font id=“size4”>
Please Join the Hope4Cameron FB group for updates on Cameron’s progress.
https://www.facebook.com/groups/hope4cameron/
Rob Harding
236 Sailfish 250 4s Yam
Charleston diving
http://www.charlestondiving.com
(Fish not Biting? Try a fast presentation of spring steel)</font id=“green”>